Resultados de Búsqueda por Autor

1

artículo

Risk factors associated with abandonment of care in retinoblastoma: analysis of 692 patients from 10 countries

Publicado por
Nishath, T, Li, X, Chandramohan, A, Othus, M, Ji, X, Zou, Y, Sultana, S, Rashid, R, Sherief, ST, Cassoux, N, Leon, JLG, Coronado, RD, Lopez, AMZ, Ushakova, TL, Polyakov, VG, Roy, SR, Ahmad, A, Reddy, A, Sagoo, MS, Harby, LA, Kim, JW, Berry, JL, Polski, A, Astbury, N, Bascaran, C, Blum, S, Bowman, R, Burton, MJ, Foster, A, Gomel, N, Keren-Froim, N, Madgar, S, Zondervan, M, Kaliki, S, Fabian, ID, Stacey, A

Publicado 2023

Enlace

Background Rates of care abandonment for retinoblastoma (RB) demonstrate significant geographical variation; however, other variables that place a patient at risk of abandoning care remain unclear. This study aims to identify the risk factors for care abandonment across a multinational set of patients. Methods A prospective, observational study of 692 patients from 11 RB centres in 10 countries was conducted from 1 January 2019 to 31 December 2019. Multivariate logistic regression was used to identify risk factors associated with higher rates of care abandonment. Results Logistic regression showed a higher risk of abandoning care based on country (high-risk countries include Bangladesh (OR=18.1), Pakistan (OR=45.5) and Peru (OR=9.23), p<0.001), female sex (OR=2.39, p=0.013) and advanced clinical stage (OR=4.22, p<0.001). Enucleation as primary treatment was not associated with a hi...

2

artículo

Impact of COVID-19 in pediatric oncology care in Latin America during the first year of the pandemic

Publicado por
Villanueva, G, Sampor, C, Palma, J, Villarroel, M, Valencia, D, Lombardi, MG, Garcia, WG, Caceres, EL, Sobrero, V, Garcia, L, Cabrera, V, Maza, I, Velasquez,T, Ugaz, C, Vasquez, JM, Coronado, RD, Gonzalez, N, Aguiar, S, Dabezies A, Moreno, F, Sardinas, S, Gamboa, Y, Maradiegue, E, Fu, L, Gassant, P, Moreno, K, Gonzales, O, Schelotto, M, Luna-Fineman, S, Antoneli, CG, Fuentes-Alabi, S, Luciani, S, Cappellano, A, Chantada, G, Vasquez, L

Publicado 2022

Enlace

Background: The ongoing coronavirus 2019 disease (COVID-19) pandemic strained medical systems worldwide. We report on the impact on pediatric oncology care in Latin American (LATAM) during its first year. Method: Four cross-sectional surveys were electronically distributed among pediatric onco-hematologists in April/June/October 2020, and April/2021 through the Latin American Society of Pediatric Oncology (SLAOP) email list and St Jude Global regional partners. Results: Four hundred fifty-three pediatric onco-hematologists from 20 countries responded to the first survey, with subsequent surveys response rates above 85%. More than 95% of participants reported that treatment continued without interruption for new and active ongoing patients, though with disruptions in treatment availability. During the first three surveys, respondents reported suspensions of outpatient procedures (54.2%), ...

3

artículo

Development of the pediatric neuro-oncology services assessment aid: An assessment tool for pediatric neuro-oncology service delivery capacity

Publicado por
Rajagopal, R, Coronado, RD, Hamid, SA, Martin, del, Campo, RN, Boop, F, Bag, A, Reséndiz, AEB, Vasudeva, Bhat, K, Campos, D, Chang, K, Cirt, R, Rahmartani, LD, Foo, JC, Hoveyan, J, Lucas, JT,, Jr, Ngcana, T, Ul, Ain, R, Omran, N, Osorio, DS, Qureshi, BM, Sabin, ND, Schandorf, E, Bankah, P, Dadzie, M-A, Gbadamos, H, Sharafeldin, H, Somathilaka, M, Yang, P, Jean-Jacques, YA, Zhang, A, Salman, Z, Gonzalez, M, Friedrich, P, Rodriguez-Galindo, C, Qaddoumi, I, Moreira, DC

Publicado 2024

Enlace

Background. To enhance the quality of care available for children with central nervous system (CNS) tumors across the world, a systematic evaluation of capacity is needed to identify gaps and prioritize interventions.To that end, we created the pediatric neuro-oncology (PNO) resource assessment aid (PANORAMA) tool. Methods. The development of PANORAMA encompassed 3 phases: operationalization, consensus building, and piloting. PANORAMA aimed to capture the elements of the PNO care continuum through domains with weighted assessments reflecting their importance. Responses were ordinally scored to reflect the level of satisfaction. PANORAMA was revised based on feedback at various phases to improve its relevance, usability, and clarity. Results. The operationalization phase identified 14 domains by using 252 questions.The consensus phase involved 15 experts (6 pediatric oncologists, 3 radiat...