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artículo

Utilizing Multilingual Methods and Rapid Analysis for Global Qualitative Research During a Pandemic

Publicado por
Graetz, DE, Sniderman, E, Villegas, C, Ragab, I, Laptsevich, A, Maliti, B, Naidu, G, Zhang, H, Gassant, P, Nunes, L, Arce, D, Vasquez, JM, Arora, RS, Alcasabas, AP, Rusmawatiningtyas, D, Raza, MR, Hamid, SA, Velasco, P, Kambugu, J, Vinitsky, A, Bolous, NS, Haidar, CE, Bihannic, L, Sa da Bandeira, D, Wang, JX, Li, D, Graca, F, Vasilyeva, A, Lesmana, H, Galindo, CR, Agulnik, A, Moreira, DC

Publicado 2022

Enlace

Historically, qualitative research has complemented quantitative biologic and epidemiologic studies to provide a more complete understanding of pandemics. The COVID-19 pandemic has generated unique and novel challenges for qualitative researchers, who have embraced creative solutions including virtual focus groups and rapid analyses to continue their work. We present our experience conducting a multilingual global qualitative study of healthcare resilience among teams of pediatric oncology professionals during the COVID-19 pandemic. We provide an in-depth description of our methodology and an analysis of factors we believe contributed to our study’s success including our use of technology, engagement of a large multilingual team, global partnerships, and framework-based rapid analysis. We hope these techniques may be useful to qualitative researchers conducting studies during the curre...

artículo

Development of the pediatric neuro-oncology services assessment aid: An assessment tool for pediatric neuro-oncology service delivery capacity

Publicado por
Rajagopal, R, Coronado, RD, Hamid, SA, Martin, del, Campo, RN, Boop, F, Bag, A, Reséndiz, AEB, Vasudeva, Bhat, K, Campos, D, Chang, K, Cirt, R, Rahmartani, LD, Foo, JC, Hoveyan, J, Lucas, JT,, Jr, Ngcana, T, Ul, Ain, R, Omran, N, Osorio, DS, Qureshi, BM, Sabin, ND, Schandorf, E, Bankah, P, Dadzie, M-A, Gbadamos, H, Sharafeldin, H, Somathilaka, M, Yang, P, Jean-Jacques, YA, Zhang, A, Salman, Z, Gonzalez, M, Friedrich, P, Rodriguez-Galindo, C, Qaddoumi, I, Moreira, DC

Publicado 2024

Enlace

Background. To enhance the quality of care available for children with central nervous system (CNS) tumors across the world, a systematic evaluation of capacity is needed to identify gaps and prioritize interventions.To that end, we created the pediatric neuro-oncology (PNO) resource assessment aid (PANORAMA) tool. Methods. The development of PANORAMA encompassed 3 phases: operationalization, consensus building, and piloting. PANORAMA aimed to capture the elements of the PNO care continuum through domains with weighted assessments reflecting their importance. Responses were ordinally scored to reflect the level of satisfaction. PANORAMA was revised based on feedback at various phases to improve its relevance, usability, and clarity. Results. The operationalization phase identified 14 domains by using 252 questions.The consensus phase involved 15 experts (6 pediatric oncologists, 3 radiat...