Resultados de Búsqueda por Autor

artículo

Development of the pediatric neuro-oncology services assessment aid: An assessment tool for pediatric neuro-oncology service delivery capacity

Publicado por
Rajagopal, R, Coronado, RD, Hamid, SA, Martin, del, Campo, RN, Boop, F, Bag, A, Reséndiz, AEB, Vasudeva, Bhat, K, Campos, D, Chang, K, Cirt, R, Rahmartani, LD, Foo, JC, Hoveyan, J, Lucas, JT,, Jr, Ngcana, T, Ul, Ain, R, Omran, N, Osorio, DS, Qureshi, BM, Sabin, ND, Schandorf, E, Bankah, P, Dadzie, M-A, Gbadamos, H, Sharafeldin, H, Somathilaka, M, Yang, P, Jean-Jacques, YA, Zhang, A, Salman, Z, Gonzalez, M, Friedrich, P, Rodriguez-Galindo, C, Qaddoumi, I, Moreira, DC

Publicado 2024

Enlace

Background. To enhance the quality of care available for children with central nervous system (CNS) tumors across the world, a systematic evaluation of capacity is needed to identify gaps and prioritize interventions.To that end, we created the pediatric neuro-oncology (PNO) resource assessment aid (PANORAMA) tool. Methods. The development of PANORAMA encompassed 3 phases: operationalization, consensus building, and piloting. PANORAMA aimed to capture the elements of the PNO care continuum through domains with weighted assessments reflecting their importance. Responses were ordinally scored to reflect the level of satisfaction. PANORAMA was revised based on feedback at various phases to improve its relevance, usability, and clarity. Results. The operationalization phase identified 14 domains by using 252 questions.The consensus phase involved 15 experts (6 pediatric oncologists, 3 radiat...