Resultados de Búsqueda por Autor

artículo

Clinical characteristics and outcomes of children with WAGR syndrome and Wilms tumor and/or nephroblastomatosis: The 30-year SIOP-RTSG experience

Publicado por
Hol, JA, Jongmans, MCJ, Sudour-Bonnange, H, Ramírez-Villar, GL, Chowdhury, T, Rechnitzer, C, Pal, N, Schleiermacher, G, Karow, A, Kuiper, RP, de Camargo, B, Avcin, S, Redzic, D, Wachtel, A, Segers, H, Vujanic, GM, van Tinteren, H, Bergeron, C, Pritchard-Jones, K, Graf, N, van den Heuvel-Eibrink, MM, International Society of Pediatric Oncology Renal Tumor Study Group (SIOP-RTSG)

Publicado 2021

Enlace

Background: WAGR syndrome (Wilms tumor, aniridia, genitourinary anomalies, and range of developmental delays) is a rare contiguous gene deletion syndrome with a 45% to 60% risk of developing Wilms tumor (WT). Currently, surveillance and treatment recommendations are based on limited evidence. Methods: Clinical characteristics, treatments, and outcomes were analyzed for patients with WAGR and WT/nephroblastomatosis who were identified through International Society of Pediatric Oncology Renal Tumor Study Group (SIOP-RTSG) registries and the SIOP-RTSG network (1989-2019). Events were defined as relapse, metachronous tumors, or death. Results: Forty-three patients were identified. The median age at WT/nephroblastomatosis diagnosis was 22 months (range, 6-44 months). The overall stage was available for 40 patients, including 15 (37.5%) with bilateral disease and none with metastatic disease. ...

artículo

Fortalecimiento de las políticas de salud pública contra el cáncer infantil: logros de Perú en el marco de la Iniciativa Mundial de la OMS contra el Cáncer Infantil

Publicado por
Maradiegue, E, Pascual, C, Vasquez, L, Maza, I, Ugaz, C, Montoya, J, Zapata, A, García, H, Chavez, S, Ordoñez, K, Rossi, J, Diaz, R, Morales, R, Trigoso, V, Ames, R, Celis, E, Barzola, I, Torres, L, Cosme, M, Tarrillo, F, Rojas, N, Santillan, C, Quispe, Y, Palacios, V, Godoy, V, Tello, M, Tarco, D, Wachtel, A, Malaver, E, Diaz, E, Goyburu, M, Perez, V, Talavera, I, Baca, ME, Maza M, Saldaña, L, Holguin, A, Jarquin, M, Loggetto, P, Metzger, M, Friedrich, P, Lam, C, Rodriguez-Galindo, C

Publicado 2023

Enlace

Objective. To report the progress in Peru, since June 2019, in the implementation of the World Health Organization Global Initiative for Childhood Cancer using the CureAll framework, which can be replicated in low- and middle-income countries. Methods. A mixed method was used of participatory and documentary evaluation. The participatory evaluation included stakeholders from various government institutions, nonprofit organizations, and international partners. The documentary aspect consisted of a review of data on the regulatory environment, national projects, and interventions implemented. The Ministry of Health engaged more than 150 participants to form working committees, which have developed policy and regulatory documents to strengthen care services. Results. Achievements include a decrease in the national treatment abandonment rate from 18.6% to 8.5%, the approval of the Childhood ...