Disability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peru

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Detalles Bibliográficos
Autores: Bernabe-Ortiz, Antonio, Diez Canseco, Francisco, Vásquez, Alberto, Miranda, J. Jaime
Formato: artículo
Fecha de Publicación:2015
Institución:Universidad Peruana de Ciencias Aplicadas
Repositorio:UPC-Institucional
Lenguaje:inglés
OAI Identifier:oai:repositorioacademico.upc.edu.pe:10757/556094
Enlace del recurso:http://hdl.handle.net/10757/556094
Nivel de acceso:acceso abierto
Materia:Activities of daily living
Care
Care givers
Peru
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dc.title.es_PE.fl_str_mv Disability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peru
title Disability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peru
spellingShingle Disability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peru
Bernabe-Ortiz, Antonio
Activities of daily living
Care
Care givers
Peru
title_short Disability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peru
title_full Disability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peru
title_fullStr Disability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peru
title_full_unstemmed Disability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peru
title_sort Disability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peru
author Bernabe-Ortiz, Antonio
author_facet Bernabe-Ortiz, Antonio
Diez Canseco, Francisco
Vásquez, Alberto
Miranda, J. Jaime
author_role author
author2 Diez Canseco, Francisco
Vásquez, Alberto
Miranda, J. Jaime
author2_role author
author
author
dc.contributor.author.fl_str_mv Bernabe-Ortiz, Antonio
Diez Canseco, Francisco
Vásquez, Alberto
Miranda, J. Jaime
dc.subject.es_PE.fl_str_mv Activities of daily living
Care
Care givers
Peru
topic Activities of daily living
Care
Care givers
Peru
description Article
publishDate 2015
dc.date.accessioned.es_PE.fl_str_mv 2015-05-30T18:02:43Z
dc.date.available.es_PE.fl_str_mv 2015-05-30T18:02:43Z
dc.date.issued.fl_str_mv 2015-05-30
dc.type.es_PE.fl_str_mv info:eu-repo/semantics/article
format article
dc.identifier.issn.es_PE.fl_str_mv 0963-8288
dc.identifier.pmid.es_PE.fl_str_mv 26017542
dc.identifier.doi.es_PE.fl_str_mv 10.3109/09638288.2015.1051246
dc.identifier.uri.es_PE.fl_str_mv http://hdl.handle.net/10757/556094
dc.identifier.eissn.es_PE.fl_str_mv 1464-5165
dc.identifier.journal.es_PE.fl_str_mv (Disability and Rehabilitation (Disabil Rehabil)
identifier_str_mv 0963-8288
26017542
10.3109/09638288.2015.1051246
1464-5165
(Disability and Rehabilitation (Disabil Rehabil)
url http://hdl.handle.net/10757/556094
dc.language.iso.es_PE.fl_str_mv eng
language eng
dc.relation.url.es_PE.fl_str_mv http://informahealthcare.com/doi/abs/10.3109/09638288.2015.1051246
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eu_rights_str_mv openAccess
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dc.publisher.es_PE.fl_str_mv Informa Healthcare
dc.source.es_PE.fl_str_mv Universidad Peruana de Ciencias Aplicadas (UPC)
Repositorio Académico - UPC
dc.source.none.fl_str_mv reponame:UPC-Institucional
instname:Universidad Peruana de Ciencias Aplicadas
instacron:UPC
instname_str Universidad Peruana de Ciencias Aplicadas
instacron_str UPC
institution UPC
reponame_str UPC-Institucional
collection UPC-Institucional
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spelling Bernabe-Ortiz, AntonioDiez Canseco, FranciscoVásquez, AlbertoMiranda, J. Jaime2015-05-30T18:02:43Z2015-05-30T18:02:43Z2015-05-300963-82882601754210.3109/09638288.2015.1051246http://hdl.handle.net/10757/5560941464-5165(Disability and Rehabilitation (Disabil Rehabil)ArticlePURPOSE: To determine the prevalence of disability in Peru, explore dependency on caregiver's assistance and assess access to rehabilitation care. METHOD: Data from Disability National Survey (ENEDIS), including urban and rural areas, were analyzed. Disability was defined as a permanent limitation on movement, vision, communication, hearing, learning/remembering or social relationships. Dependency was defined as the self-reported need for a caregiver to help with daily activities; and access to rehabilitation care was defined as the self-report of any therapy for disabilities. Estimates and projections were calculated using sample strata, primary sampling units and population weights, and prevalence ratios (PRs) and 95%CI were reported. RESULTS: From 798 308 people screened, 37 524 (5.1%; 95%CI 4.9--5.2%) had at least one disability. A total of 37 117 were included in further analysis, mean age 57.8 (SD ± 24.1) years, 52.1% women. Dependency was self-reported by 14 980 (40.5%; 95%CI: 39.2-41.9%) individuals with disabilities. A family member, usually female, was identified as a caregiver in 94.3% (95%CI: 93.3-95.3%) of dependent participants. Only 2881 (10.7%; 95%CI: 9.7-11.9%) of people with disabilities reported access to rehabilitation care. Major inequality patterns of disability burden versus access to rehabilitation care were observed by age and education level. Older age groups had higher disability burden yet lower chances of access to rehabilitation care. Conversely, the higher the education level, the lesser the overall disability burden but also the higher chances of reporting receiving care. Private healthcare insurance doubled the probability of having access to rehabilitation compared with those without insurance. CONCLUSIONS: Approximately 1.6 million Peruvians have at least one disability, and 40% of them require assistance with daily activities. Informal caregiving, likely female and relative-provided, is highly common. Rehabilitation care access is low and inequitable. Our results signal a major need to implement strategies to guarantee the highest standard of health care for people with disabilities. Implications for Rehabilitation Major inequality patterns in terms of burden of disability versus access to rehabilitation care were observed: those groups who concentrate more disability reported receiving less rehabilitation care. Caregiving is mostly informal and provided by a direct relative, mainly a woman, who resigned to their usual activities in order to help care for the person with disability. As a result, there is a need to develop appropriate support and training for caregivers. Access to care services in Peru is low and inequitable, but especially for people with disabilities: they experience greater barriers when accessing healthcare services even in the case of having health insurance.Revisión por paresapplication/pdfengInforma Healthcarehttp://informahealthcare.com/doi/abs/10.3109/09638288.2015.1051246info:eu-repo/semantics/openAccessUniversidad Peruana de Ciencias Aplicadas (UPC)Repositorio Académico - UPCreponame:UPC-Institucionalinstname:Universidad Peruana de Ciencias Aplicadasinstacron:UPCActivities of daily livingCareCare giversPeruDisability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peruinfo:eu-repo/semantics/article2018-06-22T23:13:46ZPURPOSE: To determine the prevalence of disability in Peru, explore dependency on caregiver's assistance and assess access to rehabilitation care. METHOD: Data from Disability National Survey (ENEDIS), including urban and rural areas, were analyzed. Disability was defined as a permanent limitation on movement, vision, communication, hearing, learning/remembering or social relationships. Dependency was defined as the self-reported need for a caregiver to help with daily activities; and access to rehabilitation care was defined as the self-report of any therapy for disabilities. Estimates and projections were calculated using sample strata, primary sampling units and population weights, and prevalence ratios (PRs) and 95%CI were reported. RESULTS: From 798 308 people screened, 37 524 (5.1%; 95%CI 4.9--5.2%) had at least one disability. A total of 37 117 were included in further analysis, mean age 57.8 (SD ± 24.1) years, 52.1% women. Dependency was self-reported by 14 980 (40.5%; 95%CI: 39.2-41.9%) individuals with disabilities. A family member, usually female, was identified as a caregiver in 94.3% (95%CI: 93.3-95.3%) of dependent participants. Only 2881 (10.7%; 95%CI: 9.7-11.9%) of people with disabilities reported access to rehabilitation care. Major inequality patterns of disability burden versus access to rehabilitation care were observed by age and education level. Older age groups had higher disability burden yet lower chances of access to rehabilitation care. Conversely, the higher the education level, the lesser the overall disability burden but also the higher chances of reporting receiving care. Private healthcare insurance doubled the probability of having access to rehabilitation compared with those without insurance. CONCLUSIONS: Approximately 1.6 million Peruvians have at least one disability, and 40% of them require assistance with daily activities. Informal caregiving, likely female and relative-provided, is highly common. Rehabilitation care access is low and inequitable. Our results signal a major need to implement strategies to guarantee the highest standard of health care for people with disabilities. Implications for Rehabilitation Major inequality patterns in terms of burden of disability versus access to rehabilitation care were observed: those groups who concentrate more disability reported receiving less rehabilitation care. Caregiving is mostly informal and provided by a direct relative, mainly a woman, who resigned to their usual activities in order to help care for the person with disability. As a result, there is a need to develop appropriate support and training for caregivers. 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Disability, caregiver's dependency and patterns of access to rehabilitation care: results from a national representative study in Peru
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